Measuring dementia-related stigma in the Dutch general public: Translation and validation of the Dementia Public Stigma Scale
Anne’s first article, part of her PhD research, has been published in the Journal of Alzheimer’s Disease. The publication marks an important step in understanding how public stigma surrounding dementia is perceived in the general population, and more specifically, how this stigma can be measured in a Dutch context.
The Dementia Public Stigma Scale is a tool designed to assess various forms of stigman related to dementia within society. Originally developed in English, the scale had not yet been available for use in the Netherlands. As part of her research, Anne translated and validated the scale for the Dutch context.
The study examined several key psychometric properties of the scale, including content validity, structural validity, internal consistency, and test–retest reliability. This comprehensive validation process ensures that the Dutch version of the scale accurately and reliably measures dementia‑related public stigma.
Key Findings of the Study
The Dutch version of the Dementia Public Stigma Scale demonstrated excellent psychometric properties. This indicates that the scale is both reliable and valid for use in the Netherlands. As a result, the scale can now be confidently used to measure public stigma towards dementia in the Dutch general population.
Having a validated measurement instrument is essential for advancing research in this area. It provides a solid foundation for studying stigma and supports evidence‑based approaches in public health, policy development, and dementia awareness initiatives.
What does this mean for dementia research?
Public stigma remains one of the major barriers faced by people living with dementia. It can influence experiences ranging from delayed diagnosis to access to care and social participation. The succesful adaptation and validation of this scale therefore represent an important step towards better understanding and ultimately addressing these challenges.
Within the QoLEAD project, this validated scale will be used in future research to examine which factors are associated with public stigma towards dementia in the Netherlands. By doing so, we aim to gain deeper insight into how dementia is perceived within Dutch society and to explore how this public image might be improved.
Anne’s publication represents one of many important steps within QoLEAD’s ongoing efforts to improve understanding, care, and societal attitudes towards dementia. It highlights the value of robust, research-based tools in tackling stigma and supporting meaningful change.
Read the Full Article
For a more detailed overview of the study and its findings, you can read the full article here: Measuring dementia-related stigma in the Dutch general public: Translation and validation of the dementia public stigma scale – Anne A. C. Kolmans, Sascha R. Bolt, Ruslan Leontjevas, Wijnand A. IJsselsteijn, Debby L. Gerritsen, 2026
This publication reflects the dedication and collaboration of the QoLEAD team and our continued commitment to
improving the lives of people living with dementia.